Zolgensma is a gene therapy medication used to treat spinal muscular atrophy (SMA), a rare genetic disorder that affects the motor neurons, causing progressive muscle weakness and atrophy. It is one of the most expensive drugs in the world, with its price reaching up to ₹16 crore (approximately $2 million). Despite the high cost, Zolgensma has shown remarkable results in treating SMA, particularly in infants under two years of age.

What is Zolgensma?
Zolgensma (onasemnogene abeparvovec-xioi) is a gene therapy that works by replacing the defective or missing SMN1 gene with a functional copy, allowing the body to produce the SMN protein necessary for motor neuron survival. It is a one-time treatment that can halt the progression of SMA and, in some cases, lead to significant improvements in motor function.
How Does Zolgensma Work?
Zolgensma uses a modified adeno-associated virus (AAV9) as a vector to deliver a functional copy of the SMN1 gene directly to motor neurons. Once inside the cell, the functional gene produces the SMN protein, which is crucial for the survival and function of motor neurons. This single-dose treatment aims to provide long-lasting benefits by addressing the root cause of SMA.
Zolgensma Price in India
Zolgensma is priced at approximately ₹16 crore (around $2 million) globally, making it one of the most expensive medications available. In India, the cost of Zolgensma is similar to global prices, which puts it out of reach for most families. However, there are efforts to increase access to this life-saving treatment through financial aid, insurance coverage, and charitable programs.
Eligibility Criteria for Zolgensma
Zolgensma is approved for use in patients with SMA who are under two years of age. The eligibility criteria for Zolgensma treatment includes:
- Confirmed diagnosis of SMA due to biallelic mutations in the SMN1 gene
- Age: Patients must be under two years of age
- Weight: Maximum weight of 13.5 kg (approximately 30 lbs)
- No previous gene therapy treatment
Why Choose Ketto for Zolgensma Fundraising?
Ketto is India’s leading crowdfunding platform with a proven track record of helping families raise funds for medical treatments, including Zolgensma. Here’s why Ketto is the preferred choice for many families:
- Zero platform fee for medical fundraisers
- Expert support from Ketto’s medical fundraising team
- Large donor community of 5 crore+ donors
- Fast fund disbursement — funds can be withdrawn within 24–48 hours
Can Families Really Raise ₹16 Crore for Zolgensma?
Yes — and 23 Indian families have done it on Ketto. The fundraisers that succeeded shared three things: they started within 72 hours of diagnosis, they shared their story on WhatsApp before anything else, and they set daily donation targets. The fastest raised ₹16.2 crore in 38 days. Here’s what made the difference.
₹16 Crore Sounds Impossible. 23 Families Proved It Isn’t.
Every Zolgensma fundraiser on Ketto that succeeded started within the first week. Ketto’s medical team will help you set up and amplify your campaign — at zero cost.
Every Day Matters With SMA Type 1
Zolgensma works best when given early. Our team can have your fundraiser live in 24 hours and help you reach your first ₹1 lakh within 48 hours.
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